• Maharashtra@lemmy.world
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    1 year ago

    Instead of “I’m autistic” say “I was diagnosed with autism”.

    These days there’s no shortage of self-diagnosed, no professional opinion needed, thank you very much youngsters walking around and behaving like world owes them a thing, just because they neither do, nor want to fit into the society. This makes neurotypical people doubtful about declarations like that.

    • LemmyLefty@lemmy.world
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      1 year ago

      I fully understand wanting to avoid self-diagnoses for attention seeking or blame avoiding purposes, but I tend to lean towards believing people first.

      One, because there is always going to be a discrepancy between the population of the accurately diagnosed and people who have a condition, because of poor access to mental health, because of the stigma attached with seeking help for and admitting to having a disorder, cultural differences in diagnoses and because there are poorly trained mental health professionals.

      And two, because rejecting people outright when they share what may or may not be a serious problem they’re facing puts them on the defensive and tells people in the vicinity that you may not be a safe person or contribute to a safe place to express themselves.

      The average person is going to be doubtful anyways, unless you fit into their understanding of your expressed condition. How many times have we heard “how could he kill himself, he seemed so happy?”

      • miles@kbin.social
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        1 year ago

        I didn’t get my audhd dx until i was 28 but i feel like i always knew, and i think my life might’ve been sightly less miserable in general if id just allowed myself to accept a self-diagnosis. the attitude of “you just want to be special” seriously fucked me up lmfao.

      • polygon@kbin.social
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        1 year ago

        Completely agree with this. Also, as this meme suggests, most people who are autistic don’t really need to say it out loud for people who know what autism is to know they have it. You don’t need a diagnosis to exhibit behaviors that are obvious to everyone else around you. A diagnosis doesn’t suddenly make you something you weren’t already.

        It takes a strong support system to accept and embrace that their child is autistic and a firm commitment for the entire rest of their childhood to doing whats best for the within that context. The amount of parents who simply outright reject that “something might be wrong” with their kid is extremely high, even now. That doesn’t make the kid any less autistic because they haven’t been diagnosed, and it doesn’t make their symptoms any less obvious either.

        Yes, hopefully people can get diagnosed, and hopefully your city has adequate resources to help them, and hopefully the parents aren’t jerks, and hopefully the place you live isn’t full of conspiracy theorists and crackpot religious leaders who think just praying for the kid is good enough. Hopefully. But if not, you just might have an undiagnosed autistic teenager who’s life is spinning out of control and the last thing they need is some internet expert’s dumb ass telling them there is nothing wrong because they didn’t get the magical diagnosis. Speaking from experience.

        • LemmyLefty@lemmy.world
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          1 year ago

          Your argument is that self-diagnosis causes the average person to be doubtful of expressed diagnoses. Mine is that it’s not self-diagnosis, it’s expression outside of what the average person understands a condition to be that has them doubting.

          And yes, I have been diagnosed and then been told that the diagnosis was wrong because I don’t “fit” what people think. So, yeah, I have tried, and that’s why I’m making the argument I am, because that’s what happened. If your experience has been better…great? Maybe you fit the mold better than I do.

    • finkrat@lemmy.world
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      1 year ago

      For those that did not get a diagnosis as a kid, self-diagnosing is how they begin to discover that component about themselves (I’m newly there right now in my 30’s, parent present in my life didn’t even know what autism was until the 2010’s, I am going to be seeking a professional diagnosis), so I would be mindful that some of the self-diagnoses may be telling the truth and it’s not all fad joiners/charlatans/attention seekers

      To your credit, fakers probably would be somewhat obvious, but I don’t have real life experience with a fake autist, mostly the opposite, autists thinking they’re NT.

    • SuddenDownpour@lemmy.world
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      1 year ago

      So let all people who cannot afford a diagnosis go fuck themselves, right?

      nor want to fit into the society

      The more power to them. This society is disgusting, and it’s people who want society to evolve according to their values the ones who change it for the better, not the ones who go through life bowing their head to injustices.

      • Maharashtra@lemmy.world
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        1 year ago

        So let all people who cannot afford a diagnosis go fuck themselves, right?

        That’s very peculiar, and very angry approach, entirely uncalled for. And the answer is: no.

        This society is disgusting,

        The society is the cruelest thing at its worst and the most beautiful at its best. It’s also very fragile and it tends to protect itself against every chaotic element that tries to enter it.

        If you dislike the society that much, you’re free to resign from everything it has to offer and move where it cannot reach you. If you don’t want, or can’t then it’s advisable to study its ways, so that you won’t feel threatened by it.

    • Moegle@feddit.uk
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      1 year ago

      There’s also no shortage of people who have been on waiting lists for years for a diagnosis.

      Mine took almost 4 years between referral and assessment. Two of my friends have been waiting two and four years respectively when both were told the list was “about 18 months long”, with medical professionals asking the latter if they’re sure they want to keep waiting, trying to get them to come off the list. And this is an area that has shorter wait times than average for the country.

      When you’re dealing with that kind of scarcity of diagnosis it’s not reasonable to dismiss anyone who has self-identified out of hand. Of course there are and have always been pretenders and misguided teens who want to feel special, but I also wouldn’t be surprised if it turned out that a lot of those are some kind of neurodivergent and that desire to feel special is born of trying to find a “right fit” in a world that feels wrong.